Thursday 11 September 2014

Disability Diaries - The Lt. Dan Legs (My AFO's)

It's about time that I introduced you to my AFO's (Ankle Foot Orthisis), hereafter known as the "Lieutenant Dan Legs" as they were immediately christened by my friend JP.

Strictly speaking, they should be Forrest Gump legs but Lt. Dan legs just stuck and so that's what we call them.

Firstly, you can't escape the fact that they're blue. Very blue. That was a biiiig mistake right there.


If you ever need AFO's and are given a card of designs to choose from, make sure that you ask the orthotics specialist what they are likely to look like once you receive them. The inch square picture that I based my colour/design decision on looked like inconspicuous pale pink and blue hearts on a cream background. You can imagine my shock and surprise when the finished products were carried into the room weeks later and they were THIS colour.


I have honestly regretted my style/cover choice ever since I got my AFO's. I might have felt differently and rocked the blue hearts with pride if I had some self confidence, but self confidence isn't plentiful at all and blue AFO's are very difficult to camouflage unless you want to live in baggy trousers, which I don't.

I'm more of a skinny jeans/leggings kind of girl, and although I wear my AFO's over leggings at work in the office, I still haven't ventured out in public in them unless they're covered up.

Needless to say, my next AFO's will be black! I should have just gone crazy and asked for the kids crocodile print! (98% of the patterns on offer were aimed at children. I don't know whether this varies between different NHS Trusts and countries but this was the case for me)

Just so you know:
You probably won't be able to walk properly in them straight away.

When I wore my AFO's for the first time, it took me at least ten minutes just to be able to stand up and find my balance (and this was with two people holding me up supporting me!)

I found that initial standing up experience really frightening actually. If I had to try and describe it, I'd ask you to imagine that you were wearing 3in heels for the first time whilst feeling very drunk, and that feeling that I presume you get when you first stand up in them and work out your new centre of gravity.

Only I didn't really have a centre of gravity at that time, because I'd done so much work in physio to learn how to stand up "properly" as opposed to my skewed normality and so my centre of gravity was all over the place to put it mildly.

 


So not only was I wearing 3in heels for the first time, but I was strapped tightly into these bright blue hard plastic cases from foot to knee with literally NO room for movement. I couldn't move my foot or ankle, my knees were being held back by pads and I felt as though I didn't know which way was upright. Akin to being very drunk balance-wise but without feeling relaxed or laughing your way through it.

I felt as though I was going to fall backwards if I tipped my centre of gravity back as per my physio sessions had taught me, so I automatically reverted to my "normal" and tried to shift my centre of gravity forwards. Another mistake because I nearly ended up flat on my face. I had to trust Debbie, the lovely orthotist, as she reassured me and taught me how to balance. I couldn't even raise my head to look up from the floor at first.

I remember saying to Debbie that I'd never even worn heels before so how on earth would I be able to walk in these?! For a good couple of minutes I thought that these people were barking mad for giving me these things to walk in, and I highly doubted that they would do me any good at all.

But once I realised which way was upright, everything became much less scary and I was led over to the walking bars to learn how to walk in the AFO's. Walking was much easier than standing still and I was soon walking back and forth (turning round was a problem at first though, even with bars on each side of me for support!)

I'd say that it took me a good few weeks to get used to wearing my AFO's, and for comfort and stability it's really important to follow doctors orders and get used to them gradually.

Thursday 17 July 2014

Starting over...

My decision to start my blog again here was made when this photo appeared on my Timehop app today.

It is now exactly a year and six days since my first assessment to see whether I could receive Botox treatment for my CP. A year ago today I had my first physiotherapy session since I was 12 years old.

I've always meant to blog about my Botox journey as it happened, but I could never find the right words.

But now it's a year since this crazy life changing plan of action began. I think it's time to share the highs and lows.


Wednesday 26 February 2014

Wednesday 19 February 2014

Sunday 16 February 2014

Wise Words Wednesday...

A very late Wise Words Wednesday!

Thursday 6 February 2014

Wednesday 29 January 2014

Wednesday 22 January 2014

Sunday 19 January 2014

Christmas 2013 in pictures...

Hello again! I disappeared off the radar didn't I?! I was all ready to get this blog up and running last Autumn... but then life got in the way and messed up my blogging plans.

So, here's to new beginnings (again!). Christmas seems like a million years ago now but as it's still January I feel that I can still - just about - get away with sharing some festive photos with you! These are all from my phone as I still haven't downloaded the photos from my camera yet. Must be more organised in 2014!

I went home to spend Christmas with my family. When I say home, I mean my Mum's house. As I currently live alone, home at Christmas is where my Mum and family are.

My Mum was taken very ill in November (thankfully she was much better by Christmas and is still improving by the day) so this Christmas in particular was a very poignant and special one for all of us.

I hope that you had a lovely Christmas too, if you celebrate it. What were your festive highlights?

Blurry little tree...
Carols from King's on the TV means Christmas Eve!

Christmas Eve PJ's - a new tradition!
Another new tradition - Christmas stockings for us all, opened on Mum's bed
Santa's been!
My favourite photo. Christmas hugs x


The cutest Panettone box!
 


 PS: The wooden Christmas decorations and signs in some of these photos were handmade by my super-talented Mum. If you would like to purchase something equally as lovely for your home, you can find Mum's "Not On The High Street" shop here.


Let me know if you treat yourself (or someone else!)